Canadian Organization for Rare Disorders

Canadian Organization for Rare Disorders has met with MPs 5 times since January 2024, reaching 5 MPs across 3 parties. Most recent contact: July 30, 2026.

5 meetings since 20249 all-time5 MPs3 parties0% by in-house staff

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What they're asking for

In the registry's own words. Descriptions are only filed for meetings since mid-2024.

Enhancement to Canada's regulatory and funding environment for new rare disease medicines, including Health Canada authorizations of medicines and framework for clinical trials, health technology assessment processes, reimbursement negotiations and funding decisions to improve access for rare disease patients
July 30, 2026 · Raquel Dancho · Conservative · Health; Industry; Intellectual Property; Science and Technology; Budget
Enhancement to Canada's regulatory and funding environment for new rare disease medicines, including Health Canada authorizations of medicines and framework for clinical trials, health technology assessment processes, reimbursement negotiations and funding decisions to improve access for rare disease patients.
May 26, 2026 · Helena Jaczek · Liberal · Health; Industry; Intellectual Property; Science and Technology; Budget
Establish Innovation, Science and Economic Development Canada policies related to research and development of treatments for rare disorders
October 10, 2025 · Luc Thériault · Bloc Québécois · Health; Industry; Science and Technology; Budget; Research and Development

Full meeting log

5 MP-directed communications since January 2024, from the Registry of Lobbyists.

Date	MP	Subjects	Lobbyist
2026-07-30	Raquel Dancho · Conservative	Health; Industry; Intellectual Property; Science and Technology; Budget	WILLIAM DEMPSTER (3Sixty Public Affairs Inc.)
2026-06-04	Tom Kmiec · Conservative	Health; Industry; Intellectual Property; Science and Technology; Budget	WILLIAM DEMPSTER (3Sixty Public Affairs Inc.)
2026-05-26	Helena Jaczek · Liberal	Health; Industry; Intellectual Property; Science and Technology; Budget	Stephanie Levee (3Sixty Public Affairs Inc.)
2026-05-26	Marcus Powlowski · Liberal	Health; Industry; Intellectual Property; Science and Technology; Budget	WILLIAM DEMPSTER (3Sixty Public Affairs Inc.)
2025-10-10	Luc Thériault · Bloc Québécois	Health; Industry; Science and Technology; Budget; Research and Development	Johanne Chambers (3Sixty Public Affairs Inc.)

Counts include only communications where a sitting MP is the named public office holder — meetings with ministers' staff, senators, or departments are not shown. Registrants self-report these records. See our methodology.