Organizations

Amyotrophic Lateral Sclerosis Society of Canada

Amyotrophic Lateral Sclerosis Society of Canada has met with MPs 38 times since January 2024, reaching 27 MPs across 4 parties. Most recent contact: June 2, 2026.

38 meetings since 2024120 all-time27 MPs4 parties100% by in-house staff

What they're asking for

In the registry's own words. Descriptions are only filed for meetings since mid-2024.

  1. To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.

    June 2, 2026 · Ziad Aboultaif · Conservative · Health; Industry; Science and Technology; Taxation and Finance; Budget

  2. To provide funding for neuromuscular diseases, one of which is ALS, with regards to reinstating funding from the government to help fund researchers in the neuromuscular field. Sources of funding are to be determined.

    October 2, 2025 · Ben Carr · Liberal · Health; Science and Technology; Budget; Research and Development

Full meeting log

38 MP-directed communications since January 2024, from the Registry of Lobbyists.

DateMP
2026-06-02Ziad Aboultaif · Conservative
2026-06-02Peter Fragiskatos · Liberal
2026-06-02Marie-Hélène Gaudreau · Bloc Québécois
2026-06-02Chris Malette · Liberal
2026-06-02Elizabeth May · Green Party
2026-05-07Alana Hirtle · Liberal
2026-04-16Peter Fragiskatos · Liberal
2026-03-25Burton Bailey · Conservative
2026-03-25Doug Eyolfson · Liberal
2025-11-24Peter Fragiskatos · Liberal
2025-11-24Marie-Hélène Gaudreau · Bloc Québécois
2025-11-24Kurt Holman · Conservative
2025-11-24Ernie Klassen · Liberal
2025-10-02Ben Carr · Liberal
2025-10-02Adam Chambers · Conservative
2025-10-02Maggie Chi · Liberal
2025-10-02Michael Chong · Conservative
2025-10-02Kerry Diotte · Conservative
2025-10-02Peter Fragiskatos · Liberal
2025-10-02Tamara Jansen · Conservative
2025-10-02Tom Kmiec · Conservative
2025-10-02Marie-France Lalonde · Liberal
2025-10-02Zoe Royer · Liberal
2025-10-02Doug Shipley · Conservative
2025-10-02Fraser Tolmie · Conservative
Show all 38 meetings
DateMP
2025-10-02Anita Vandenbeld · Liberal
2025-10-01Marjorie Michel · Liberal
2025-09-03Leslie Church · Liberal
2025-06-17Maggie Chi · Liberal
2025-06-17Peter Fragiskatos · Liberal
2025-06-17Marie-Hélène Gaudreau · Bloc Québécois
2025-06-17Annie Koutrakis · Liberal
2025-06-17Zoe Royer · Liberal
2025-06-17Judy A. Sgro · Liberal
2025-05-23Peter Fragiskatos · Liberal
2024-09-24Yasir Naqvi · Liberal
2024-09-24Judy A. Sgro · Liberal
2024-08-08Peter Fragiskatos · Liberal
Counts include only communications where a sitting MP is the named public office holder — meetings with ministers' staff, senators, or departments are not shown. Registrants self-report these records. See our methodology.